Walk in my Wheels

Access. Awareness. Support.

Filtering by Tag: SCIlife

Time flies with a Toddler

It’s been a while between posts, 2 years in fact. Our little girl Eleven is now speeding towards turning 3 and it’s safe to say it’s been quite a busy time.

The most important event in that time would have to be our wedding in New Zealand in December last year. That trip wasn’t uneventful as far as accessiblity went, kicking off with getting stranded at Wellington airport in the wee hours of the morning with no wheelchair taxis on duty. This was a bit of an eye opener for my sister Karen who hadn’t traveled with me before. I ended up in a patient transfer van with the ambulance service, and Eleven got to ride in an ambulance with her aunty.

We traveled across the straight once again on the ferry as the wedding was to be held on the beach at Whenuanui Bay in the Marlborough Sounds which is where Jess’s family own a very special ‘bach’ or holiday home that’s been passed down through the generations. We kept it small and just had a couple of my closest family members - my sister and my adult daughter Courtney, and Jess’s immediate family, aunties and uncles.

Jess came walking down the beach with her Mum and Dad and holding Eleven who got the swing of throwing the rose petals as they walked. My sister Karen did the bulk of the food, with her background in catering she did an incredible job and we had a spectacular lunchtime picnic. It was truly a magical day for us.

Although we were unable to stay at the bach due to there being no accessible bathroom, we had a great unit with an incredible view over the water in Waikawa, a 20 minute drive away. We had a few hiccups in registering a car that I’d shipped from Melbourne so we instead had to hire a car in Wellington - which then had a ceiling that was too low for me to travel in comfortably.

We enjoyed Eleven’s 2nd birthday with my family in Caloundra, again renting our favourite unit at La Promenade overlooking the river.

Back here in Darwin I’ve been busy finishing up a Cert IV in Community Services at Charles Darwin University, giving school talks with NDS re life with disability and encouraging kids to think about the disability sector for a career pathway, and working to establish some more supports here depending on getting some funding.

I’ve also been volunteering with a local disability advocacy organisation called IDA, and even found myself a board member. I’ve currently got my fingers crossed for some funding to be approved so we can have more impact here in the NT.

In other news… I’ve modeled in a fashion show, been fixing up a 1963 Combi Van, found a regular Saturday market job looking after the bouncy castle, and kept improving the house and section.

Jess has been back at uni studying Visual Arts and is enjoying getting involved with the arts community here slowly and is particularly impressed with me at the moment as I just helped her create a studio space here at home.

I’m hoping to do a bit more of this blogging thing, so let me know what you want to know about…

Me Ol' Mate Jamie - 20 years on

I recently had the pleasure of spending some quality time with me ol' mate and his family in his home town of Launceston... we met in the spinal rehab 20 years ago... but here I'll let him tell his own story:


My typical day starts about 6 am rising up out of bed ready for a days work on a construction site as a carpenter, pushing my body and brain to the best of its capabilities like any 22 year old healthy male's body is designed for. On weekdays after work depending on what day of the week or what time of the year it is, I would do what most guys would do which was hang out with mates, and have a drink at the pub after work meet my girlfriend or depending on the time of year during summer cricket training, during winter boxing and running. Weekends play or watch sport, mow my lawns and my father's as he relies on me as he is older now an unable to or take my dog for a walk go fishing.

A simple but happy every day life, not complicated but what I felt was the life for me. Many other people would probably agree - a job, steady income, girlfriend, mans best friend a dog, mates, a roof over my head, and fantastic health - it seems perfect life on track really AND THEN THAT'S WHEN IT HAPPENED.

Let me introduce myself my name is Jamie Kelly from Tasmania, and on the 29th of October 1995 at the age of 22 I became part of a group that I knew nothing about, that is a spinal cord injury (SCI) or in my case a T-6 Complete paraplegic. I woke up not knowing where I was or what was going on and very groggy not being able to move to be told eventually when I could understand things that I was involved in a motor bike accident and have broken my back and would be staying in Melbourne for 6 months or more for rehabilitation at the Royal Talbot along with other injuries such as loss of sight in my right eye, breakayl plexus in my right arm, jaw rewired with missing teeth a loss of over 20 kilos a trachy in so I cannot even communicate back to ask questions all I can do is listen as a doctor just keeps telling me what is in store for me. Face reconstruction when I saw myself in the mirror I could hardly believe the reflection to see that I was actually looking at myself and not someone else.

When I was told my back was broken I knew that meant I could not walk again, which a lot of people knew from common sense or word of mouth about that injury - but was I shocked to find out the other symptoms that go along with a SCI such as no feeling from level of break, spasms, hyperreflexia (also known as autonomic dysreflexia), loss of bowel and bladder control, bladder infections, pressure sores, and if that wasn't enough then the rush of other things started to enter my thoughts like where am I going to live? My place is not wheelchair accessible it has stairs, a bath, tight corridors and there goes sport and what about an income because there goes my job.  Will I be able to drive again? What world am I living in now, can I cope and am I strong enough to do this? Have I really got friends or people just hanging around and relationship wow that's friggin scary to even think about, and can I still have kids? So many questions and things to organise and yet I'm supposed to concentrate on getting healthy and strong again just to sit up so I can start rehab.

Well you too may have these thoughts and the answer is yes you can have these things and after rehabilitation you can adapt and continue on. I'm now 41 and married from a new relationship since my accident with children and yes we can learn to drive with hand controls. You will find your friends will stand by you and help when needed after all that's why you can call them your friend.

You will learn to LIVE in a different way but it's still worth living so don't give up, it's just a new chapter to your life.

Like any injury it will test your spirit and who you are as a person, but at the end of the day you are still you - just not walking - so keep on "fighting" for you and your family.

Tasmania Travels - getting lucky in Hobart

Our final days in Hobart consisted of enjoying the harbour views, solid time with the bennies and Peg (an upright mate I used to play footy with in Waaia in Victoria) and his missus Chrissie before heading to Launceston to see some old mates from rehab.

Peg, me, and Boof in front of the Grand Chancellor Hobart

Peg, me, and Boof in front of the Grand Chancellor Hobart

We stayed at the Grand Chancellor in Hobart for three nights, lapping up the 5 star luxury, which ended up being paid for in the winnings off the roulette wheel at the Casino - my numbers 33 and 35 came through for me again. For the full report on the hotel room take a look at the review blog post... did I mention it had an AAAAAAAMMMAAYYZZZIIINNNGG view over the harbour... you'd pay 4 figures a night in Sydney for a view like that!

Whilst there we visited the Tasmanian Museum and Art Gallery which was right across the road - check out the pics below of the pretty groovy sculptural ramp come courtyard seating. We didn't have enough time to have a good look around but what we saw was really interesting.

We also called into the Maritime Museum of Tasmania where we were greeted by ol' mate x 3 - they finished off our look around with some entertaining stories (even if they did have a tendency of repeating themselves!). Fantastic access here and a lift is going in to open up the second level of the building.

On our drive up from Hobart we stopped into say goodbye to Boof and he recommended we take the turnoff to Ross for a stopover... and we were glad he did.... Ross is one lovely old town and I even bumped into my mate Bruce from the cigarette shop in Echuca there! It boasts the third oldest bridge still in use in Australia - a sandstone number constructed by the convicts in 1936.  There's many lovely old buildings down tree-lined streets- including the old barracks for the soldiers - throw in a great bakery, and a fantastic antique shop or two and this is one town I was happy to have discovered. No antique finds for me, but I enjoyed the process of looking! 

Then on up the highway to Launie...

Tasmania Travels - teddy bears & all things nice

Week two of our Tassie adventure was jam-packed. We had a day on the beautiful Bruny Island, played 10 pin bowling with some other bennys, explored more of Hobart and the south-east coast, snuggled up in Snug for a week, met up with old friends holidaying here, saw the latest Star Wars movie, met a bloke battling cancer striving to finish his Huon pine houseboat … yep... some memories we'll take with us to our deathbeds for sure.

It seems we were a little lax at taking photos at Bruny Island, but here's a few of the ferry that we were able to drive the car onto (hot tip: be sure to go to the front of the line to the wheelchair parking spot when you enter the terminal). Oh, and there's a selfie of us at the cheese factory, and one Jess took of a pretty beach where we let Horsey have a swim.

The highlight would have to be the massive lunch at Hotel Bruny - the oysters were MAGNIFICENT! And a close follow-up was the bargains we got from ol' mate at The Green Shed, the islands only second-hand junk shop. Not much more to say... we drove around a bit, stopped at the cheese place, and then the chocolate place, grabbed a coffee and an icecream at the coffee cart place, and then it was time to head back! Lucky for us we got a couple of hours of beautiful weather before it clouded in and started to rain. 

Our only hiccup re. wheelchair access during this time was a trip to the Sandfly Market which was held in the town hall - but the wheelchair accessible door was blocked by a bookcase (we were told to make a complaint to the local council) - luckily with some 4WDing I got to a side door so I did manage to get in. Jess found my resulting purchases (below) amusing.

The below images are from our drive around the D'Entrecasteaux Channel - part of the Huon Trail. The drive south from Snug through to Cygnet and back to Snug via an inland road, was on a gorgeous sunny day, and the landscape was a mix of pretty rural scenes, quaint little towns, and sparkling beaches.

We stopped at Peppermint Bay in Woodbridge, a beautiful spot for cuppa with some interesting architecture and garden sculptures.... Eggs & Bacon Bay was a pretty spot but we were hugely disappointed there was nowhere selling a bacon and egg sanga... Cygnet dished up some healthy grub and an inspiring chat with Rob whose quest is to finish his remarkable floating artwork/home.

Still to come.. blog posts on the remainder of ourTasmanian trip including Hobart, Launceston, our friends Boof, Trent, Jamie, and the 20 year post rehab reunion!